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Using MRI art, poetry, photography and patient narratives to bridge clinical and human experiences of stroke recovery
  1. Gabrielle Brand1,2,
  2. Ashlee Osborne1,
  3. Steve Wise3,
  4. Collette Isaac4,
  5. Christopher Etherton-Beer5,6
  1. 1Division of Health Professions Education, Faculty of Health and Medical Sciences, The University of Western Australia, Perth, Western Australia, Australia
  2. 2School of Nursing & Midwifery; Monash Centre for Scholarship in Health Education, Monash University, Melbourne, Victoria, Australia
  3. 3Medical Illustration Department, Royal Perth Hospital, Perth, Western Australia, Australia
  4. 4Royal Perth Hospital, Perth, Western Australia, Australia
  5. 5Medical School, Faculty of Health & Medical Sciences, The University of Western Australia, Perth, Western Australia, Australia
  6. 6Royal Perth Bentley Group, Royal Perth Hospital, Perth, Western Australia, Australia
  1. Correspondence to Dr Gabrielle Brand, Division of Health Professions Education, Faculty of Health and Medical Sciences, The University of Western Australia, Perth, Western Australia, Australia; gabrielle.brand{at}uwa.edu.au

Abstract

Integrating co-produced humanities-based pedagogy into patient and workforce education is of growing interest. The aim of our Depth of Field: Exploring Stroke Recovery project grew from a strong commitment to use patients' lived experiences as a voice to educate new stroke patients and the health professional staff who will care for them. The aim of the initial Quality Improvement project at a West Australian Stroke Rehabilitation Unit (SRU) was to co-produce a reflective learning resource with stroke patients and their families to help navigate the stroke recovery journey. A series of artefacts (documentary-style photographs, audio-narrated vignettes, MRI images and poetry) were collected from four stroke patients and their families at differing stages of recovery over 12 months as they recounted the honest and raw reality of what life is really like following a stroke. These artefacts were used in a pilot qualitative project to explore new stroke patients, their families and SRU health professional staff perceptions towards the artefacts in order to inform the final educational resource. These findings enhance our understandings of how we can use art and patient (healthcare consumers) voice to widen the lens of stroke recovery and provides a valuable template to co-produce peer-to-peer and health professions education reflective learning resources to promote more human- centred approaches to care.

  • arts in health
  • education
  • narrative medicine
  • patient narratives
  • poetry

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Footnotes

  • Contributors GB conceived, designed and was the primary author of the Depth of Field: Exploring Stroke Recovery resource. CI, AO and CEB contributed to the acquisition and interpretation of the older adult narratives. SW took the photographs for the resource. All authors contributed to the design of the resource and this article. All authors met the ICJME requirements for authorship.

  • Funding This study has been funded by The University of Western Australia.

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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