End-of-life caregiver's perspectives on their role: generative caregiving

Gerontologist. 2010 Apr;50(2):204-14. doi: 10.1093/geront/gnp116. Epub 2009 Aug 3.

Abstract

Purpose: To describe caregivers' constructions of their caregiving role in providing care to elders they knew were dying from life-limiting illnesses.

Design and methods: Study involved in-depth interviews with 27 family caregivers. Data were analyzed using constant comparative analysis.

Results: Four categories were identified: centering life on the elder, maintaining a sense of normalcy, minimizing suffering, and gift giving. Generative caregiving was the term adopted to describe the end-of-life (EOL) caregiving role. Generative caregiving is situated in the present with a goal to enhance the elder's present quality of life, but also draws from the past and projects into the future with a goal to create a legacy that honors the elder and the elder-caregiver relationship.

Implications: Results contribute to our knowledge about EOL caregiving by providing an explanatory framework and setting the caregiving experience in the context of life-span development.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Caregivers / psychology*
  • Female
  • Humans
  • Interviews as Topic
  • Male
  • Middle Aged
  • Quality of Life
  • Role*
  • Terminal Care*