RT Journal Article
SR Electronic
T1 The freighted social histories of HIV and hepatitis C: exploring service providers’ perspectives on stigma in the current epidemics
JF Medical Humanities
JO J Med Humanit
FD BMJ Publishing Group Ltd and Institute of Medical Ethics
SP medhum-2022-012382
DO 10.1136/medhum-2022-012382
A1 kylie valentine
A1 Anthony K J Smith
A1 Asha Persson
A1 Rebecca Gray
A1 Joanne Bryant
A1 Myra Hamilton
A1 Jack Wallace
A1 Kerryn Drysdale
A1 Christy E Newman
YR 2022
UL http://mh.bmj.com/content/early/2022/10/27/medhum-2022-012382.abstract
AB A virus has a social history. In the case of the hepatitis C virus (HCV) and HIV, this history is one involving stigma and discrimination, advocacy and activism, and recent dramatic improvements in treatment. These social histories influence the experience of people who live with the viruses, and those who work with them. One aspect of this is the impact of social changes on the biographical disruption and integration brought about by illness. Healthcare practitioners who see significant improvements in the effectiveness of treatment for a condition over the course of their professional life will incorporate those changes into their own history and their relationship to that condition.This article is based on a study of the experiences of serodiscordance, or mixed infection status, in families living with HIV and two types of viral hepatitis, hepatitis B and hepatitis C. The article explores the perspectives of healthcare workers who work with people affected by these viruses, who were asked about their experiences in working with serodiscordance in families. Interviews revealed that changing social meanings given to bloodborne viruses, and changes to treatment over time, held a significant place in the accounts that service providers gave of their work. In asking them to describe their work with HIV and HCV, we were also asking about work that has been shaped by changing patterns and sources of stigma, and recently reshaped by changes in treatment and outcomes. While typically the experiences of patients and their families are used to investigate the social histories of diagnosis and stigma, the professional perspectives and life stories of the service providers who work with them are also revealing. We heard accounts in which histories as well as current regimes were prominent, illuminated further by insights from the sociology of health on narrative and biographical disruption.No data are available.