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Stories of chronic illness: exploring qualitative data through poetic transcriptions
  1. Margaret Simmons1,
  2. Gabriela Carolus2,
  3. Mahima Kalla3
  1. 1Monash Rural Health, Monash University, Faculty of Medicine Nursing and Health Sciences, Traralgon, Victoria, Australia
  2. 2Division of Health System and Public Health, Department of Global Health, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa
  3. 3Faculty of Medicine Dentistry and Health Sciences, The University of Melbourne, Melbourne, Victoria, Australia
  1. Correspondence to Ms. Gabriela Carolus; gabrielacarolus{at}gmail.com

Abstract

As a research technique, poetic transcription transforms people’s stories and enables deeper analysis and engagement between participants, readers and researchers. Chronic illness is often characterised as a ‘biographical disruption’, which may threaten a patient’s self-identity and equanimity. Such disruptions often influence patients’ perceptions of imminent life changes, social relationships and cognitive and material resources. Thus, poetic transcription offers a valuable tool for making sense of complex illnesses and lived experiences. This paper demonstrates how raw interview data can be reconstructed into a poetic format to highlight the nuances of people’s lived illness experiences, which may remain elusive to them and others. A qualitative survey was conducted with a small group of patient participants, eliciting chronic illness narratives analysed through poetic transcription. Poetic transcription becomes a rigorous and legitimate qualitative research method through multiple iterations and extensive data engagement. Our main themes are focused on biographical disruption, temporality, humour, voice and ableism.

  • art and medicine
  • arts in health/arts and health
  • poetry
  • poetry and prose
  • Medical humanities

Data availability statement

Data are available upon reasonable request.

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Data availability statement

Data are available upon reasonable request.

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Footnotes

  • X @drmarg58, @GabrielaCarolus

  • Contributors MS was responsible for the overall content as the guarantor, conceived the paper and drafted the first version. GC and MK contributed substantially to reflecting on the work, contributing to data analysis and revising it critically for important intellectual content; both have provided final approval of the version to be published.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Patient and public involvement Patients and/or the public were not involved in the design, or conduct, or reporting, or dissemination plans of this research.

  • Provenance and peer review Not commissioned; externally peer-reviewed.

  • Supplemental material This content has been supplied by the author(s). It has not been vetted by BMJ Publishing Group Limited (BMJ) and may not have been peer-reviewed. Any opinions or recommendations discussed are solely those of the author(s) and are not endorsed by BMJ. BMJ disclaims all liability and responsibility arising from any reliance placed on the content. Where the content includes any translated material, BMJ does not warrant the accuracy and reliability of the translations (including but not limited to local regulations, clinical guidelines, terminology, drug names and drug dosages), and is not responsible for any error and/or omissions arising from translation and adaptation or otherwise.