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Medical performance and the ‘inaccessible’ experience of illness: an exploratory study
  1. Emma Weitkamp1,
  2. Alex Mermikides2
  1. 1Science Communication Unit, The University of the West of England, Bristol, UK
  2. 2Department of Drama, Kingston University, Kingston-Upon-Thames, Surrey UK
  1. Correspondence to Dr Emma Weitkamp, Science Communication Unit, The University of the West of England, Frenchay Campus, Coldharbour Lane, Bristol BS16 1QY, UK; Emma.weitkamp{at}uwe.ac.uk

Abstract

We report a survey of audience members' responses (147 questionnaires collected at seven performances) and 10 in-depth interviews (five former patients and two family members, three medical practitioners) to bloodlines, a medical performance exploring the experience of haematopoietic stem-cell transplant as treatment for acute leukaemia. Performances took place in 2014 and 2015. The article argues that performances that are created through interdisciplinary collaboration can convey otherwise ‘inaccessible’ illness experiences in ways that audience members with personal experience recognise as familiar, and find emotionally affecting. In particular such performances are adept at interweaving ‘objectivist’ (objective, medical) and ‘subjectivist’ (subjective, emotional) perspectives of the illness experience, and indeed, at challenging such distinctions. We suggest that reflecting familiar yet hard-to-articulate experiences may be beneficial for the ongoing emotional recovery of people who have survived serious disease, particularly in relation to the isolation that they experience during and as a consequence of their treatment.

  • Cancer care
  • Haematology

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

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