Quality of life: subjective descriptions of challenges to patients with end stage renal disease

Nephrol Nurs J. 2006 May-Jun;33(3):285-92.

Abstract

Objective: The objective of this qualitative study was to describe how persons with end stage renal disease (ESRD) experience and manage the quality of their daily lives.

Design: Naturalistic inquiry methods guided the collection of interview data and the use of content analysis and constant comparison techniques to inductively identify themes and categories of meaning.

Sample/setting: Participants were 80 adults recruited from an outpatient hemodialysis center.

Findings: The three emergent conceptual categories that describe the quality of everyday life among the study group were: 1) Life Restricted with sub-themes "tied down," "left out," and "doing without;" 2) Staying Alive with sub-themes "love from others," "accept it as part of life," and "trust in God;" and 3) Feeling Good with sub-themes "personal satisfaction" and "being happy."

Conclusion: The insights shared by this study group can assist providers with planning and implementing educational and support programs for patients and families.

MeSH terms

  • Activities of Daily Living
  • Adaptation, Psychological*
  • Adult
  • Aged
  • Attitude to Health*
  • Cost of Illness
  • Family / psychology
  • Female
  • Friends / psychology
  • Happiness
  • Humans
  • Interpersonal Relations
  • Kidney Failure, Chronic / psychology*
  • Kidney Failure, Chronic / therapy
  • Male
  • Middle Aged
  • Models, Psychological
  • Nurse's Role
  • Nursing Methodology Research
  • Qualitative Research
  • Quality of Life / psychology*
  • Religion and Psychology
  • Renal Dialysis / psychology
  • Social Support
  • Southwestern United States
  • Surveys and Questionnaires